ABSTRACT

Family life in the context of disability has been the focus of a significant amount of research across a range of disciplines, such as health care studies, medicine, social policy and psychology. Their focus has been on the burden of responsibility such families face, with an increasing interest in families who are identified as resilient and on how intervention might build this resilience in others. This approach has been criticised by the disability movement as presenting disability as both a tragedy and an individual problem for families to manage.